Turkish Journal of Urology
ENDOUROLOGY - Original Article

Development of a prospective data registry system for retrograde intrarenal surgery in renal stones: Turkish Academy of Urology Prospective Study Group (ACUP study)

1.

Department or Urology, Selçuk University School of Medicine, Konya, Turkey

2.

Department of Urology, Kafkas University School of Medicine, Kars, Turkey

3.

Department of Urology, Koç University School of Medicine, İstanbul, Turkey

4.

Department of Urology, University of Health Sciences, Bakırköy Dr. Sadi Konuk Training and Research Hospital, İstanbul, Turkey

5.

Department of Urology, İstanbul Medipol University School of Medicine, İstanbul, Turkey

Turk J Urol 2020; 46: 57-62
DOI: 10.5152/tud.2019.19143
Read: 338 Downloads: 54 Published: 18 November 2019

Objective: We aimed to report the development of a prospective data registry by generating a retrograde intrarenal surgery (RIRS)-specific electronic case report form (eCRF), which can be used by multiple centers in Turkey.

Material and methods: The Stone Disease Study Group of Turkish Urology Academy developed a template for the necessary data to be collected, which was then implemented within a dedicated server. Urologists from different universities, research and training centers, and private hospitals were invited to participate in this data registry. Each urologist was provided with a unique username and password after they agreed to participate in the study.

Results: In March 2015, the development of the eCRF was completed, and the server was opened for data input in April 2015. We started a prospective clinical data registry for all patients undergoing RIRS for renal stone(s) in 15 participating hospitals. Until the end of June 2016, 1112 RIRSs on 1264 patients have been included in the dataset.

Conclusion: The easy-to-use eCRF specifically developed for RIRS was first of its kind in Turkey. This prospective data registry harvests important data that will be used to identify real-world demographic, clinical and operative data of patients with renal stone who undergo RIRS in various urology departments throughout Turkey. The results of this dataset will be presented in various papers.

Cite this article as: Akand M, Sarıca K, Kiremit MC, Soytaş M, Güven S. Development of a prospective data registry system for retrograde intrarenal surgery in renal stones: Turkish Academy of Urology Prospective Study Group (ACUP study). Turk J Urol 2020; 46(1): 57-62.

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ISSN2149-3235 EISSN 2149-3057